Sawyer

Sawyer lived with 22q11 deletion syndrome and Tetralogy of Fallot, but those diagnoses were only a small part of who he was.

He was funny, stubborn, courageous, deeply loved, and determined to experience life fully despite every challenge placed in front of him.

He never wanted to be defined by limitations.

Whether he was trying something new, making people laugh, pushing through difficult days, or quietly showing incredible resilience, Sawyer carried a strength that often left the people around him in awe.

This space was created for him.
For his story.
For the love that remains.

Organizations Close To Our Heart

Sawyer’s life was shaped by extraordinary strength, resilience, and the realities of living with 22q11 deletion syndrome and Tetralogy of Fallot.

For families walking similar paths, these organizations offer education, support, advocacy, research, and community.